He was a figure in the fight against Charcot disease. The painter Karine Brailly died in Purpan, where she was hospitalized, this Wednesday, January 15, the Collective Survive, Fight, Advance with Charcot announced on Facebook.
“The collective regrets to announce that our friend Karine Brailly passed away last night. We send all our condolences to his family and loved ones,” the association shared.
First request for deep sedation rejected
Karine Brailly decided to show the living conditions of people affected by this disease by starting a hunger strike on December 30. The 56-year-old woman lamented the lack of support and the absence of a caregiver at her side, lamenting that this is “the daily life of many patients,” in an interview with La Dépêche.
Charcot disease is a neurodegenerative pathology that harms the native of the North at all levels, since she cannot walk or eat alone, which makes her situation at home impossible, without a full-time assistant. And although she has a 14-year-old son, the northerner had lived alone at home for eight years.
Karine Brailly died after deep sedation. His application was initially rejected, La Dépêche explains, before finally being accepted.
“She asked to benefit from deep sedation because there is no solution, because this is going in circles,” her caregiver explained to Ici Occitanie at the beginning of January.
He then indicated that “he was suffering physically and psychologically.”
According to an information sheet from the Ministry of Health, the objective of deep sedation “is to reduce or eliminate the perception of a situation experienced as unbearable by the patient, while all available means could have been offered and adapted to this situation for him without obtain the expected relief.”
Source: BFM TV
