Céline Dion, who suffers from stiff person syndrome, has felt its effects for more than ten years. This is what she tells Vogue in an interview published on Thursday, May 23. As the premiere of his documentary approaches I am: Celine DionIn the documentary that chronicles her fight against the disease, the Quebec singer evokes the first appearances of this disorder that keeps her away from the stage.
It wasn’t until December 2022, when she was forced to cancel the final dates of her world tour after multiple postponements, that the superstar revealed to the world that she was suffering from this rare neurological disease. However, its effects had begun to be felt more than ten years earlier, in 2008, during its Taking Chances World Tour.
“Very soon I had difficulty controlling my voice,” Céline Dion recalled to the fashion magazine.
“He went very far into the high notes and then spasms came over him,” he continues. “As a singer, the first thing I have to do is go to the otorhinolaryngologist (…). “They examined my vocal cords and told me they were impeccable.”
“I had to hold on to things.”
Celine Dion finished the tour, followed by a 7-year residency in Las Vegas and several additional tours, before noticing new symptoms: “I started having trouble walking. I had to hold on to objects.”
It was only thanks to Covid-19 that the singer of Why do you still love me? He delved into the problem: “When the pandemic hit, I told myself that the universe was not wrong and that I was going to take advantage of this period and this opportunity to investigate after years of playing hide and seek with myself. friends, my family, my children… I didn’t want to be brave anymore. “It was time for me to be smart.”
After extensive examinations, the diagnosis finally came: “I was happy. I was finally able to ride the wave instead of fighting it.”
A film about his new life.
According American Institutes of Health (NIH), stiff man syndrome is a rare neurological disorder with features of an autoimmune disease.
It is characterized by “a fluctuating stiffness of the muscles of the trunk and extremities and an increased sensitivity to external stimuli such as noise, touch, emotional discomfort… which can trigger muscle spasms.”
Scheduled for June 25 on Prime Video, I am: Celine Dion will offer “a raw and honest look behind the scenes of the superstar’s struggle with a life-changing illness,” according to a statement. The trailer for this film directed by Irene Taylor was released on Thursday, May 23.
Celine Dion has made numerous appearances in recent months. She surprised the public for the first time. Grammy awards, on February 4, when he went to present an award to Taylor Swift. She also regularly posts photographs of herself with her three sons, René-Charles, Nelson and Eddy Angelil, behind the scenes of sporting events. They were recently immortalized alongside Mick Jagger in Las Vegas, after a Rolling Stones concert. The singer also posed for Vogue cover last April.
Source: BFM TV
